Dear Expectant Parent,
We are here for you. We want you to know that we will walk along this journey with you, as you navigate your child’s prenatal diagnosis. We will provide a listening ear, answers to any of your questions, and resources along the way.
Let’s talk about getting that diagnosis. A lot of families refer to this as a “flashbulb” moment. This is a moment that you will never forget, and you will carry it with you for a lifetime. I still remember when the doctor told me my son had Down syndrome. I remember every word he said, I remember exactly where I was, I remember the feeling afterward. The feeling of someone coming in and turning your world upside-down. Time just stops and you are left with this diagnosis, and you don’t know what to do with it.
First of all, it’s okay to grieve. You’ve received heart-breaking news that your child will have a life-long, permanent disability. Allow yourself to go through the grieving process. Reach out to us for support, we have a list of families who have been through this grieving period, who would be honored to share their story and support you during this time.
There are some great resources to read during this time, and we have listed them here:
The Down Syndrome Collaborative is a collaboration of top programs who serve expectant and new parents of children with Down syndrome, from pregnancy to age 3.
The Down Syndrome Diagnosis Network is a wonderful support to families who have just received a prenatal diagnosis.
Down Syndrome Pregnancy offers accurate, balanced, and up-to-date books about Down syndrome that can be downloaded at no cost.
The National Prenatal First Call Center provides timely access to professionally-trained peer support parents of children with Down syndrome. Their support is confidential, discreet, and free of charge.
Let’s start with the basics. Do you know what Down syndrome is? When my son was diagnosed with Down syndrome, I didn’t know what Down syndrome was. I didn’t know anyone with Down syndrome either. I had only seen either someone with Down syndrome in passing or on TV.
Let’s talk about Down syndrome. The following links provide fantastic information on Down syndrome.
You will find updated, correct information at the National Down Syndrome Congress, and the National Down Syndrome Society. There is a lot of information on both of these sites, so take it in chunks. Take your time and learn about Down syndrome. Don’t overwhelm yourself; read it in chunks. If you have any questions along the way, contact us.
Where do we go from here? We want to make sure you are educated on Down syndrome with updated, accurate information. We also want to make sure you have learned about parenting a child with Down syndrome, and all of your questions about raising a child with DS have been answered. If you have additional questions or just want to talk, contact Stephanie via voice or text at 513-709-1751 or email her here. If you feel like you may not be able to parent, we are here for you. We will walk with you as take this journey of possibly placing your child for adoption. We will be here with you every step of the way.